The Story of Our Son Stephan – How Israeli Doctors Defeated Retinoblastoma
When our twins were born on October 16, 2012, we could not even imagine the troubles we were going to face. Our son Stephan and daughter Lera were born strong and healthy. We were discharged home after six days, full of joy and without any signs of trouble.
But when Stephan was 6 weeks old we noticed that his pupil was not black, but transparent. We were worried and turned to an ophthalmologist. Unfortunately, the specialist was on vacation and we had to wait two weeks until she would return. We scheduled an appointment immediately after she came back.
She examined both of our children and told us that Stephan has some problems with his eyes. She was not able to diagnose the disease as there was no special diagnostic equipment. She said that Stephan suffers from poor vision and has a coloboma. We then received a referral for additional diagnostics.
We were trying to save the life of our son and at least one eye and the eyesight in it. That’s why we decided to go to Israel to treat Stephan. Israeli specialists really saved the life of our baby and his left eye. During the course of Stephan’s retinoblastoma treatment, which lasted for one year and three months, he underwent several procedures, including installation of a subcutaneous venous port (this system is surgically installed in patients undergoing chemotherapy), 4 courses of aggressive chemotherapy, surgical removal of the right eye on May 8, 2013, and a subsequent right eye prosthesis.